So... Here's My Thing

[Just-Legal]

*more hugs*

Keep us informed, love, please.

 

[yui]

*hugs* Neon. Thanks for the update, and I hope you find a diagnosis which gives you peace very soon.

 

[rcfstl]

neon,
Sorry dont know you but I feel your pain. Have the same nasty little fibers in my lungs, as do my brothers, my mother, my grandfather and most of the people I grew up with and lived with.

Keep strong.

 

[moonlight elf]

Neon, *huggles*. I'm glad that you updated us. You are in my prayers and thoughts. Wishing you strength and peace.


~Moonie

 

[neonlyte]

Mostly Good News!

Latest. Had my brain sliced into 36 pieces for analysis, nothing untoward or of concern, though quite fascinated by the flattening of the eyeballs demanding I wear glasses and how the nose extends for almost four inches into the head! Neck vertebrae show signs of damage, one vertebra is extending into the spinal cortex, pinching it and may be responsible in part for the neurological condition.

Blood work shows evidence of a viral infection, but elects not to identify what it might have been. The presumption is the viral infection caused an inflammation of the cortex and the additional pressure caused by the displaced vertebra resulted in sporadic loss of limb function, breathing difficulties etc. The consultant now wants to determine residual damage to the cortex following the infection; difficult since it is an un-operable condition. More test will be done, this time with electricity and nerve ends - can't wait.

More blood tests too, I told the nurse last time to fit a tap so they could just run off a pint or two as when they needed. Thank God for insurance, the bill is approaching £5,000 but at least I get free coffee.

The prime viral candidate is Lyme's Disease, the wife had this last year, no fun. We think he may just be making the connection since the display of symptoms is similar, the next round of blood tests may confirm… or not.

The really good news is No Tumors, No evidence of MS or other degenerative illness… and my brain appears to fill the inside of my head… so that rattling noise must be something else entirely.

I'll mention this because I found it fascinating. The consultant explained the way the virus is attacking the nervous system - and most importantly why I ought to fully recover (other than the cortex problem). The virus is interferring with the chemical composition of the outer sheathing of the nerve, these chemicals speed the transfer of information across nodes in the neural pathway. The nodes have a self repair capability, infact each packet of information transfered demands a degree of reconstruction. This virus is delaying the self-repair function, but only fractionally, which explains why I'm getting things slightly out of sync, losing balance etc. The body defence mechanisms will eventually deal with it. If the virus were inside the nerve - it would be a different matter entirely, progressive degeneration.

I enjoy the precision of explanation rendered by the expert, though he cannot explain why this infection might be causing all of the symptoms I experience and whether they are connected.

Meanwhile I've made great progress today on identifying who may have given me asbestos poisoning, a couple more phonecalls and the solicitor will know whom to commence proceedings against. Unlike the US, damage claims in UK are limited in quantum, for this stage of the disease, payment is low, however it establishes an open file claim, if the disease progresses, staged compensation, medical bills etc are all covered without the need to re-establish liability.

I feel good.

 

[cloudy]

I feel good.

that just made my day.

 

[ABSTRUSE]

Latest. Had my brain sliced into 36 pieces for analysis, nothing untoward or of concern, though quite fascinated by the flattening of the eyeballs demanding I wear glasses and how the nose extends for almost four inches into the head! Neck vertebrae show signs of damage, one vertebra is extending into the spinal cortex, pinching it and may be responsible in part for the neurological condition.

Blood work shows evidence of a viral infection, but elects not to identify what it might have been. The presumption is the viral infection caused an inflammation of the cortex and the additional pressure caused by the displaced vertebra resulted in sporadic loss of limb function, breathing difficulties etc. The consultant now wants to determine residual damage to the cortex following the infection; difficult since it is an un-operable condition. More test will be done, this time with electricity and nerve ends - can't wait.

More blood tests too, I told the nurse last time to fit a tap so they could just run off a pint or two as when they needed. Thank God for insurance, the bill is approaching £5,000 but at least I get free coffee.

The prime viral candidate is Lyme's Disease, the wife had this last year, no fun. We think he may just be making the connection since the display of symptoms is similar, the next round of blood tests may confirm… or not.

The really good news is No Tumors, No evidence of MS or other degenerative illness… and my brain appears to fill the inside of my head… so that rattling noise must be something else entirely.

I'll mention this because I found it fascinating. The consultant explained the way the virus is attacking the nervous system - and most importantly why I ought to fully recover (other than the cortex problem). The virus is interferring with the chemical composition of the outer sheathing of the nerve, these chemicals speed the transfer of information across nodes in the neural pathway. The nodes have a self repair capability, infact each packet of information transfered demands a degree of reconstruction. This virus is delaying the self-repair function, but only fractionally, which explains why I'm getting things slightly out of sync, losing balance etc. The body defence mechanisms will eventually deal with it. If the virus were inside the nerve - it would be a different matter entirely, progressive degeneration.

I enjoy the precision of explanation rendered by the expert, though he cannot explain why this infection might be causing all of the symptoms I experience and whether they are connected.

Meanwhile I've made great progress today on identifying who may have given me asbestos poisoning, a couple more phonecalls and the solicitor will know whom to commence proceedings against. Unlike the US, damage claims in UK are limited in quantum, for this stage of the disease, payment is low, however it establishes an open file claim, if the disease progresses, staged compensation, medical bills etc are all covered without the need to re-establish liability.

I feel good.

Hugs babe, thanks for the fascinating look inside your head. Hoping for the best for you from here on.

 

[hugo_sam]

Latest. Had my brain sliced into 36 pieces for analysis, nothing untoward or of concern, though quite fascinated by the flattening of the eyeballs demanding I wear glasses and how the nose extends for almost four inches into the head! Neck vertebrae show signs of damage, one vertebra is extending into the spinal cortex, pinching it and may be responsible in part for the neurological condition.

Blood work shows evidence of a viral infection, but elects not to identify what it might have been. The presumption is the viral infection caused an inflammation of the cortex and the additional pressure caused by the displaced vertebra resulted in sporadic loss of limb function, breathing difficulties etc. The consultant now wants to determine residual damage to the cortex following the infection; difficult since it is an un-operable condition. More test will be done, this time with electricity and nerve ends - can't wait.

More blood tests too, I told the nurse last time to fit a tap so they could just run off a pint or two as when they needed. Thank God for insurance, the bill is approaching £5,000 but at least I get free coffee.

The prime viral candidate is Lyme's Disease, the wife had this last year, no fun. We think he may just be making the connection since the display of symptoms is similar, the next round of blood tests may confirm… or not.

The really good news is No Tumors, No evidence of MS or other degenerative illness… and my brain appears to fill the inside of my head… so that rattling noise must be something else entirely.

I'll mention this because I found it fascinating. The consultant explained the way the virus is attacking the nervous system - and most importantly why I ought to fully recover (other than the cortex problem). The virus is interferring with the chemical composition of the outer sheathing of the nerve, these chemicals speed the transfer of information across nodes in the neural pathway. The nodes have a self repair capability, infact each packet of information transfered demands a degree of reconstruction. This virus is delaying the self-repair function, but only fractionally, which explains why I'm getting things slightly out of sync, losing balance etc. The body defence mechanisms will eventually deal with it. If the virus were inside the nerve - it would be a different matter entirely, progressive degeneration.

I enjoy the precision of explanation rendered by the expert, though he cannot explain why this infection might be causing all of the symptoms I experience and whether they are connected.

Meanwhile I've made great progress today on identifying who may have given me asbestos poisoning, a couple more phonecalls and the solicitor will know whom to commence proceedings against. Unlike the US, damage claims in UK are limited in quantum, for this stage of the disease, payment is low, however it establishes an open file claim, if the disease progresses, staged compensation, medical bills etc are all covered without the need to re-establish liability.

I feel good.

Neon
Glad you are getting some type of answers. It seems most are positive. Good news. My best wishes for a continued recovery.

 

[Guest]

.......

 

[Guest]

I feel good.

Now I do too. Paz, querido. P.

 

[English Lady]

I'm glad you feel good neon long may it continue!