The "Damn, I hurt!" Thread

[Daniellekitten]

I came home from the doctor when he told me that I had fibro and told my so. He said so that's why you haven't wanted me to touch you, I said, nope, but if you want to believe it, I'll let you.

 

[voluptuary_manque]

Is it because of our general pain that we retreat into stories?

 

[TxRad]

Is it because of our general pain that we retreat into stories?

I think it's more the pain stimulates the stories rather than a retreat. I write out of boredom for the most part. Most of that boredom is from hurting to much to do anything else constructive. If I'd get out and do more I would hurt less. I know this but the motivation just ain't there.

Pain is a stimulant in most cases.

 

[Guest]

Pain is a stimulant in most cases.

*nods*
Physical or emotional. It spurs me to get away, in any way I can. I can lose myself sometimes when I write, and I also get that little endorphin rush when someone reads it and tells me how much they enjoy it.

All those little endorphins are wonderful painkillers. *smile*

 

[Guest]

Well, I've long suspected it, and this thread proves it--we're a sick bunch!

Here's a tip for my fellow fibro sufferers that may help (and then again, may not)--when I'm in flare, absolutely NOTHING helps as much as markedly increasing my protein intake for a day or two. I used to have flares that went on for 7-10 days; now, I can cut them down to 2-4 days, and the last days aren't as bad.

Sometimes, though, the "fibrofog" is the worst of it--I write for a living, and not being able to think, having my thoughts feel like they're swimming through molasses, can be scary as hell.

(and very gentle hugs all around.)

 

[Vermilion]

I think it's more the pain stimulates the stories rather than a retreat. I write out of boredom for the most part. Most of that boredom is from hurting to much to do anything else constructive. If I'd get out and do more I would hurt less. I know this but the motivation just ain't there.

Pain is a stimulant in most cases.

Amen.

 

[Vermilion]

Sometimes, though, the "fibrofog" is the worst of it--I write for a living, and not being able to think, having my thoughts feel like they're swimming through molasses, can be scary as hell.

(and very gentle hugs all around.)

Brain fog ain;t limited to fibro

And I had a blog once called 'Swimming Through Treacle', guess the metaphor wasn't as original as I thought...

 

[Daniellekitten]

I think it's more the pain stimulates the stories rather than a retreat. I write out of boredom for the most part. Most of that boredom is from hurting to much to do anything else constructive. If I'd get out and do more I would hurt less. I know this but the motivation just ain't there.

Pain is a stimulant in most cases.

I use writing as a kind of therapy. When I'm in the midst of a plotline, in a chapter that's flowing, the pain isn't there anymore. It's only at night that I'm in the most pain.

 

[Just-Legal]

The fiance is sat next to me. One of his main problems is people who know *what* Fibro is say "Oh, but its a female disease"... No, its just more PREVALENT in women.

Also, he walks with a stick. Ohh we have fun with old farts...

 

[SeaCat]

LOLOL

It's definately interesting reading peoples reactions to their pain and how others perceive it.

Because of my Sciatica I have problems every now and then. One of the most common, other than the pain, is one hip or the other tends to just kind of give out on me. (The right more often for some reason.) Because of this I tend to walk close to the walls in work, walls which just happen to have grab rails. My co-workers have seen me stumble on occasion and grab the rail to hold myself upright. They know the condition. (It's amazing how many of them have Sciatica, then again back injury is the most common ailment among Nursing Staff.) I have been accused on occasion by patients and family mebers of being under the influence because they have seen me stumble.

Because of dealing with my pain for too many years, (25 years.) I have a high tolerance to pain. I never realised just how high it was though until I ended up with Cellulitis in my right ankle. (I posted about that here over a year ago.) When I showed up at the walk in clinic my ankle was larger around than my thigh and a lovely deep red in color. I walked in under my own power although it did smart a bit. The M.D. took one look at my ankle and asked me how I had managed to walk on it and what I wanted for the pain. He was willing to give me Narcotics for it, then he shook his head in shock when I told him I didn't need anything for the pain. (He did manage to save my foot although I do have Vascular Problems with it.) Since then though I have seen a lot of people with Cellulitis on my unit. Most of them are diagnosed early and are much less severe cases than mine. Most of them are on some serious pain killers.

Cat

 

[DesertPirate]

My sister cares for my mother and she has handicap plates for her car. We go anywhere and I tell her she doesn't need to use them for me but she does anyway. I've gotten some of those same looks. It helps when I bring my cane with me but I hate the damn thing and hate to use it. I'm too young to have to use a freaking cane which is the reason this is my second one, I ran the first one over with my car.

No one deserves those looks or to have others bash them for their problems.

When you're my age Dani you will have a collection of the damn sticks.
I even have one cane from Kenya and one from Egypt.

 

[neonlyte]

I was certain I'd be posting my woes... but honestly, I've not felt this good in a loooong time. Sure, lots of aches and pains but virtually none of the 'neuro' problems since the last dose of antibiotics. I'll have the blood test results in about 3 weeks, we'll see if we got the little bleeders.

To those of you suffering... I wish each of you well

 

[Vermilion]

I was certain I'd be posting my woes... but honestly, I've not felt this good in a loooong time. Sure, lots of aches and pains but virtually none of the 'neuro' problems since the last dose of antibiotics. I'll have the blood test results in about 3 weeks, we'll see if we got the little bleeders.

To those of you suffering... I wish each of you well

i don't want to jinx you but *yay*!

Long may it last
xxx
V

 

[ABSTRUSE]

Hey folks.

I've just started Relafen (nabumetone). Has anyone else been on it and how did it work for you?

 

[CrimsonMaiden]

I was certain I'd be posting my woes... but honestly, I've not felt this good in a loooong time. Sure, lots of aches and pains but virtually none of the 'neuro' problems since the last dose of antibiotics. I'll have the blood test results in about 3 weeks, we'll see if we got the little bleeders.

To those of you suffering... I wish each of you well

I'm keeping my fingers crossed for you.

 

[LadyCibelle]

Legs and feet still look like overstuffed sausage after 3 days on the diuretics. If anyone has any idea how long it'll still take before my legs blow up, I'd like to hear from them.

Those pills are supposed to make me evacuate all those fluids but I haven't noticed any changes in my urine quantity or frequency.

Anyone got an idea? Legs and feet don't hurt, but I can't curl my toes or rotate my ankles at all......the reception between feet and brain doesn't seem to reach.

 

[ABSTRUSE]

Legs and feet still look like overstuffed sausage after 3 days on the diuretics. If anyone has any idea how long it'll still take before my legs blow up, I'd like to hear from them.

Those pills are supposed to make me evacuate all those fluids but I haven't noticed any changes in my urine quantity or frequency.

Anyone got an idea? Legs and feet don't hurt, but I can't curl my toes or rotate my ankles at all......the reception between feet and brain doesn't seem to reach.

Keep your legs elevated and try cool compresses for the swelling.

 

[Guest]

Legs and feet still look like overstuffed sausage after 3 days on the diuretics. If anyone has any idea how long it'll still take before my legs blow up, I'd like to hear from them.

Those pills are supposed to make me evacuate all those fluids but I haven't noticed any changes in my urine quantity or frequency.

Anyone got an idea? Legs and feet don't hurt, but I can't curl my toes or rotate my ankles at all......the reception between feet and brain doesn't seem to reach.

What has happened? Did you talk about this earlier in the thread?

 

[LadyCibelle]

Keep your legs elevated and try cool compresses for the swelling.

I've been doing that for the past week now. It doesn't seem to do anything apart from annoying the hell out of me and making me shiver from all those cool compresses, remember I live in FFC (Fucking-Freezing-Cold) country.

 

[ABSTRUSE]

I've been doing that for the past week now. It doesn't seem to do anything apart from annoying the hell out of me and making me shiver from all those cool compresses, remember I live in FFC (Fucking-Freezing-Cold) country.

then you need to go to a tropical island.......I'll start a fundraiser.

 

[Vermilion]

Legs and feet still look like overstuffed sausage after 3 days on the diuretics. If anyone has any idea how long it'll still take before my legs blow up, I'd like to hear from them.

Those pills are supposed to make me evacuate all those fluids but I haven't noticed any changes in my urine quantity or frequency.

Anyone got an idea? Legs and feet don't hurt, but I can't curl my toes or rotate my ankles at all......the reception between feet and brain doesn't seem to reach.

All I can do is reiterate my earlier suggestion to try that treatment I mentioned - I lost 2lbs in water weight overnight and have been (if you'll excuse the language) pissing like a race horse since then.

Also - you are making sure to keep your water intake up, aren't you? It may help flush things through.

<hugs again>
xxx
V

 

[Guest]

I've been doing that for the past week now. It doesn't seem to do anything apart from annoying the hell out of me and making me shiver from all those cool compresses, remember I live in FFC (Fucking-Freezing-Cold) country.

My left ankle swells occasionally - the one I broke. It's worse when I don't exercise.

We've placed wood beneath the foot of the bed - it's permanently elevated now.

On bad days as soon as I wake up (before I get out of bed) I put on serious support hose. That helps prevent backup of fluids.

There are also some stroking exercises you can do on your skin, helping the liquid to find its way out.

So sorry to hear what you (and others) are going through.

 

[LadyCibelle]

All I can do is reiterate my earlier suggestion to try that treatment I mentioned - I lost 2lbs in water weight overnight and have been (if you'll excuse the language) pissing like a race horse since then.

Also - you are making sure to keep your water intake up, aren't you? It may help flush things through.

<hugs again>
xxx
V

I'm looking into that treatment, Millie. Yeah I'm drinking like a water horse. But I'm just not pissing more. I've always had a good urine retention and when I go it feels like niagara falls, so nothing has changed. I still pee like crazy, not more, not less.

 

[LadyCibelle]

then you need to go to a tropical island.......I'll start a fundraiser.

If you move with me on the tropical island.

 

[LadyCibelle]

My left ankle swells occasionally - the one I broke. It's worse when I don't exercise.

We've placed wood beneath the foot of the bed - it's permanently elevated now.

On bad days as soon as I wake up (before I get out of bed) I put on serious support hose. That helps prevent backup of fluids.

There are also some stroking exercises you can do on your skin, helping the liquid to find its way out.

So sorry to hear what you (and others) are going through.

Support hose? Hmm that's something I didn't think about. I think my father still has a couple pairs he had to wear after his triple-bypass surgery. I'll see if he can send me some.