Cookie

[gracie920101]

I am so sorry that any of us have to go thru this journey.

I've sat through mom's struggle and only a couple of years later sat with my only sister watching her husband only to do the same with her 11 months later. I wouldn't wish it on anyone and now envy when I read of someone "passing quietly in their sleep" ...but it's not as if we're given a choice. We all will make the trip in one way or another.

Don't waste a precious minute so you'll have plenty of memories to hold dear.
My heart truly aches.

Hugs for you and yours.

 

[MastersDelight]

We love you cookie. * hugs *

 

[cookiecat]

Hi.

What a difference a week makes. Today, the husband got out in the sun. He was tilted way back with his feet above his head - he was wrapped up (sushi style ) in a big 'ole blanket - the sun shining on his face and he fell asleep. It was a good moment.

We've had several choking incidents. The whole can't breathe - what now? Each time, he snaps out of it. Holy fuck, though.

Thanks so much for all the well wishes and supportive messages. It feels really good.

 

[ToPleaseHim]

{{Cookie}}

 

[Tallcajun]

Prayers continue, cookie.

 

[MastersDelight]

Thinking of you and yours. Hoping things stay peaceful.

 

[MyNameIsNO]

I hope Mr. Cookie enjoyed his college football

 

[Farawyn]

Glad he got the sun in his face.

 

[Tallcajun]

That is a simple pleasure.

 

[clistenovena]

What a truly sad and difficult happening for you and your husband to have to live. Wishing you both strength and grace in the days to come.

 

[ouchfeelsgood]

It's a very tough thing to be going through, for both you and your husband. But there are many people on Lit who are here for you, if you need us.

 

[OralDave]

Hi.

What a difference a week makes. Today, the husband got out in the sun. He was tilted way back with his feet above his head - he was wrapped up (sushi style ) in a big 'ole blanket - the sun shining on his face and he fell asleep. It was a good moment.

We've had several choking incidents. The whole can't breathe - what now? Each time, he snaps out of it. Holy fuck, though.

Thanks so much for all the well wishes and supportive messages. It feels really good.

That's great! (except for the choking!) I'm happy for both of you.

 

[cascadiabound]

Glad he got the sun in his face.

That is a simple pleasure.

{{{{{{{COOKIE}}}}}}}

sending you love as you share good moments together
sending you steadiness as you have sheer moments of terror

reminding you that the bucket of virtual hugs is limitless

 

[Gwanji16]

We are with you, Cookie. Thoughts and prayers for you both!

Hugs,

Gwanji

 

[GoAztecs]

Sending positive thoughts to you both

 

[Wild_Honey_66]

(((cookie)))

 

[TheJestersAdvocate]

Damn shame you've had to deal with the choking scares but thankfully he got some joy sitting out in the sun.....I hope that everything is still looking good, Cookie. Take care.

*leaves a big warm strong comforting bearhug for Cookie*

 

[DarkSimian]

I don't know you all that well, but sending you all my positive thoughts and vibes

 

[twister947]

I don't know you all that well, but sending you all my positive thoughts and vibes

Same here. Take care of yourself, Miss Cookie.

 

[cookiecat]

I don't know you all that well, but sending you all my positive thoughts and vibes

Same here. Take care of yourself, Miss Cookie.

Thanks to both of you.

It's a weird feeling, this just sitting here, the waiting. It's good - he's here! He's with me. Mostly with me.

It's quiet. It's like the world outside isn't really part of our lives. We had an aide here today. I went to run an errand and within the hour, I was called back due to breathing issues. We got him calmed down; drugged up, I guess.

It's so so odd. Three weeks ago, he was sitting up straight, he could motor his own wheelchair, we still went out a little bit -- out with friends, out to dinner. In a day, seriously, in one day, he became all hunched over. Stephen Hawking like. How does that happen in the space of a day?? No more regular eating, tube feeding only. Breathing issues. Panic attacks.

I want a blueprint on how this is supposed to happen. The crystal ball to tell me how long he'll be here with me. Will I have another month with him? More? Will he get worse? Every night I get up to watch him sleep.

Thanks again for all the support. It's invaluable. Lit is a happy place for me to visit.

 

[La damnee elle la licorne]

 

[gracie920101]

Thanks to both of you.

It's a weird feeling, this just sitting here, the waiting. It's good - he's here! He's with me. Mostly with me.

It's quiet. It's like the world outside isn't really part of our lives. We had an aide here today. I went to run an errand and within the hour, I was called back due to breathing issues. We got him calmed down; drugged up, I guess.

It's so so odd. Three weeks ago, he was sitting up straight, he could motor his own wheelchair, we still went out a little bit -- out with friends, out to dinner. In a day, seriously, in one day, he became all hunched over. Stephen Hawking like. How does that happen in the space of a day?? No more regular eating, tube feeding only. Breathing issues. Panic attacks.

I want a blueprint on how this is supposed to happen. The crystal ball to tell me how long he'll be here with me. Will I have another month with him? More? Will he get worse? Every night I get up to watch him sleep.

Thanks again for all the support. It's invaluable. Lit is a happy place for me to visit.

Oh honey, that crystal ball would be worse! This allows you, if you will, to live in and savor the moment instead of focusing on the future.

My experience has taught me to wear the important jewelry and use the good silverware and tell those around me whatever I need them to know because time does have a limit.
Hugs to you both.

 

[TheJestersAdvocate]

Oh honey, that crystal ball would be worse! This allows you, if you will, to live in and savor the moment instead of focusing on the future.

My experience has taught me to wear the important jewelry and use the good silverware and tell those around me whatever I need them to know because time does have a limit.
Hugs to you both.

I'd like to second that thought.....it maybe nice to know the future, but then you would have a certain time to dread. Ignorance can be bliss....and since it's uncertain when things will get worse, focus now instead on enjoying the moments you have together.

Easier said than done, I bet.

Take care, Cookie. *gives Cookie a big warm strong bearhug*

 

[cookiecat]

Love to you.

Mainly here this morning to give you my love.

Oh honey, that crystal ball would be worse! This allows you, if you will, to live in and savor the moment instead of focusing on the future.

My experience has taught me to wear the important jewelry and use the good silverware and tell those around me whatever I need them to know because time does have a limit.
Hugs to you both.

I like this sentiment a lot.

I'd like to second that thought.....it maybe nice to know the future, but then you would have a certain time to dread. Ignorance can be bliss....and since it's uncertain when things will get worse, focus now instead on enjoying the moments you have together.

Easier said than done, I bet.

Take care, Cookie. *gives Cookie a big warm strong bearhug*

I think we do live in the moment. What I write here is more of an internal conversation. With him, it's all about making him comfortable, making him smile. Touching him. Telling him what's going on with Lit Just small talk, small moments that keep us connected.

Thanks again for the good thoughts and virtual hugs. Mr. cookie says it's all good.

 

[Dreamliner]

cookie, I trust you both get the time to be with each other and share your quiet times together, while you both manage the situation you find yourselves in.