Oldenburg
Really Experienced
- Joined
- Feb 16, 2015
- Posts
- 224
Wednesday - 11:40 pm
Oh pete! And all of you who replied or messaged - thank you. A million thank you's and hugs -- Mr. cookie knows I'm on Lit, knows I've been having fun with new friends! He smiled hearing about the support we get here. A week ago, we knew he had declined to a point we needed to start planning for the difficult decisions we'd have to make. But just a week ago, we thought we had some time.
2 days ago, he passed out, he was throwing up, he just got sicker. The hospice doctor told us he was actively dying and he said these symptoms indicated Mr. cookie had days to live. What the heck? Days????? On top of it, Mr. cookie felt like he wanted to go. He was hallucinating. He was miserable. Everything the hospice nurse did made him worse. It was this surreal nightmare -- the people who promised comfort care were making him worse.
Sunday night, around 1 a.m. we ended up in the ER. The goal was only to stabilize his nausea. Instead, they told us he had pneumonia.
To make this insane, perfect storm of everything that could go wrong going wrong story shorter... we spent 2 long days in the hospital thinking this was it.
As of right now, he's sleeping in bed at home.
He's weak. He has a hard time speaking. When he looks at me, he's not looking at me. But he's lucid. He's home. He's actually comfortable.
Our days ahead will be more difficult. He's completely bedridden. Lost all muscle control in his neck. It's so weird. He's spent the last two years in his wheelchair pretty much 24/7. He slept in his chair. He never ever got a pressure sore. His bony little butt is now covered in bruises, welts and open sores. In 24 hours, it just went from bad to worse.
I know I share a lot here. Maybe too much sometimes?? I appreciate that some of you are riding this roller coaster ride with me. Some of you have experienced hospice, caring for someone sick, have gone through this grief process and I've appreciated your support, your empathy and your friendship.
Thanks, everyone. I feel really grateful for so much.
Ohh Cookie sending huge hugs for you...
You will be in my thoughts all day now.. I've also had the week from hell, My Dad was rushed to hospital last Sunday, on Weds he was put into a medical induced coma.. Will be thinking of you and Mr Cookie...