Got Crohn's? Smoke a J?

[desertslave]

(Peeking out from lurking for a moment)

Over the past few months I have had moments of having to crawl up our stairs, slowly, and when able to walk, taking 10 minutes to get up 12 steps, collapsing in exhaustion at the top. I am tired of the pain, am on advice to only take tablet form painkillers once a week if possible (not possible right now), and they don't even begin to touch it anyway. So yes, I am at the point I am ready to go ask the experts which cake or cookie they advise for what ails me and give it a go. Tempting fate perhaps, but I find myself thinking it has to be better than this right now. Thank goodness F is patient and even cuts my dinner for me when I am unable to do it myself.

Catalina

Once a week?????? WTF kind of bullshit doctor are you seeing? That's nonsense! Can you find a different doc and/or go to a pain clinic for better care?

I won't say my doc hands out pain relief like candy, but he is VERY thoughtful and caring. I worried to him about being a drug-seeker, and he told me that if I'm really in pain (and he knows what's up with me) then taking what gets me close to normal isn't remotely drug-seeking.

Please, if you can, find a more caring, attentive doc.

 

[graceanne]

Once a week?????? WTF kind of bullshit doctor are you seeing? That's nonsense! Can you find a different doc and/or go to a pain clinic for better care?

I won't say my doc hands out pain relief like candy, but he is VERY thoughtful and caring. I worried to him about being a drug-seeker, and he told me that if I'm really in pain (and he knows what's up with me) then taking what gets me close to normal isn't remotely drug-seeking.

Please, if you can, find a more caring, attentive doc.

One of the blessings of having the same rheumatologist for awhile is that he knows me, and he knows I'm not a drug seeker, so if I ask for pain meds, he just asks me what I want and how much. This is because one months supply lasts me, at the VERY LEAST, four months and normally six to eight months. Occasionally, his nurses tease me when I call for a refill and tell me that I go through them to fast, and we laugh. Then they tell me he'll have the script filled by the end of the day, and that's the end of that.

My primary asked if I'd like to switch my pain medication care over to him, and I said no, because I don't have the patience to prove to another doctor that I'm not a drug seeker, and he understood.

 

[Lilly73]

I saw weed give my husband his only nights rest while in the final stages of cancer.

I smoke because I like it. Cheaper than alcohol, no hangvover, no black outs, its not addictive and I have never woken up the next day wondering what happened the night before.

*throws 2 cents in the cookie jar*

L.

 

[nh23]

Thanks. Had rheumatoid arthritis when I was around 13 which mainly affected my feet. Every time I went to ballet lessons, my feet ballooned to the point I couldn't get any shoes on for the next few days...so ballet was given up. Now they say I have osteo, but as no-one including me has much faith in the medical field here, I keep an open mind. Is fairly disheartening when you go to a specialist in the hospital rheumatology department and get told, 'Well what do you expect us to do? You have arthritis, so you will have pain, nothing we can do.'' That then lead to a GP telling me that 70% of pain is in the brain anyway and if you just ignore it and do something you enjoy, you will not feel pain anymore...of course, when they found I still had major pain when I was doing things I loved (on the rare days I could do them), they were stumped and gave me the advice of learning to live with it and hope it goes away.

Catalina

Unfortunately this is the answer a lot of the time for autoimmune diseases. In the last few years I've been diagnosed with two separate autoimmune illnesses. The issue that caused me to seek treatment in the first place was pain all over that was getting unbearable. I've been told by three different specialists to date that I just have to learn to live with the pain. Its incredibly frustrating. Having this much pain is not living. It changes everything.

Gracie, I've been gluten free for a little over a year now. I don't "feel" like it helps any but my labs which were 2,000 to start with when 0-9 is normal are now at 200 after being gluten free for a year so something must be working.

I would love to use mj as a lot of people with my illness say it is very helpful. However I'm a nurse and one positive drug test would ruin my career and I can't risk it.

 

[graceanne]

Unfortunately this is the answer a lot of the time for autoimmune diseases. In the last few years I've been diagnosed with two separate autoimmune illnesses. The issue that caused me to seek treatment in the first place was pain all over that was getting unbearable. I've been told by three different specialists to date that I just have to learn to live with the pain. Its incredibly frustrating. Having this much pain is not living. It changes everything.

I hear you. At last count I have five auto immune diseases. lol Do you mind if I ask what you have?

Gracie, I've been gluten free for a little over a year now. I don't "feel" like it helps any but my labs which were 2,000 to start with when 0-9 is normal are now at 200 after being gluten free for a year so something must be working.

Bummer. Sadly, gluten free doesn't work for everyone, just some people. I figure it's worth a try. For me, the only discernible difference is less bathroom trips.

Some foods are worth the extra trips.

I would love to use mj as a lot of people with my illness say it is very helpful. However I'm a nurse and one positive drug test would ruin my career and I can't risk it.

There are benefits to living in a state where MJ is allowed for medical reasons.

 

[nh23]

Gracie I've been diagnosed with Hashimotos Disease and Lupus.

 

[graceanne]

Gracie I've been diagnosed with Hashimotos Disease and Lupus.

From 'prescription for nutritonal healing'.

Hashimato's disease

Essential nutrients - kelp (2000-3000 mg daily) as it contains iodine, the basic substance of thyroid hormone and l-tyrosine (500 mg 2X daily, on empty stomach with water or juice (NOT MILK) as low plasma levels have been associated with hypothyroidism.

Recommendations - include daily in the diet molasses, egg yolks, parsley, apricots, dates, and prunes. Avoid white flour and sugar. Do not take sulfa drugs or antihistamines unless directed by a doctor. avoid fluoride and chlorine as chlorine and fluoride block iodine receptors in the thyroid gland​

Lupus

Recommendations - eat a diet low in fat, salt and animal protein - this kid of diet is easy on the kidneys. Eat fresh, not canned, pineapple frequently as bromelain, an enzyme present in fresh pineapple, is excellent for reducing inflammations. Avoid the nightshade veggies (peppers, eggplant, tomatoes, and white potatoes, as these foods contain solanin, which can contribute to inflammation and pain. Avoid using birth control pills, as they may cause lupus flare ups.​

While I have the book out ....

arthritis

Essential nutrients: boron (3mg daily DO NOT EXCEED THAT AMOUNT) - a trace mineral required for healthy bones. bromelain (as directed on label) an enzyme that helps to stimulate production for prostaglandins, which help digest protein. glucosomin (as directed - IF YOU'RE ALLERGIC TO SHELL FISH MAKE SURE THAT YOUR GLUCOSOMINE ISN'T DERIVED FROM SHELLFISH. lesson learned. ) important fort the formation of bones, tendons, ligaments, cartilage, and join fluid.

Recommendations - cats claw is helpful for relieving arthritis pain. Cayenne contains a compound called capsaicin that relives pain by inhibiting the release of the neurotransmitter responsible for communicating pain sensations. Man people with arthritis have high levels of copper and iron in their bodies so they should consume foods containing the amino acid histidine like rice, wheat, and rye. Also eat FRESH pineapple frequently, as it contains bromelain, which is excellent for reducing inflammation. Avoid the nightshade veggies (peppers, eggplant, tomatoes, white potatoes, as they contain solanine, which interferes with enzymes in the muscles and may cause pain and discomfort. Do not take iron supplements as iron is suspected of being involved in pain, swelling, and joint destruction - instead get your iron through natural resources like molasses, broccoli, etc.​

 

[nh23]

From 'prescription for nutritonal healing'.

Hashimato's disease

Essential nutrients - kelp (2000-3000 mg daily) as it contains iodine, the basic substance of thyroid hormone and l-tyrosine (500 mg 2X daily, on empty stomach with water or juice (NOT MILK) as low plasma levels have been associated with hypothyroidism.

Recommendations - include daily in the diet molasses, egg yolks, parsley, apricots, dates, and prunes. Avoid white flour and sugar. Do not take sulfa drugs or antihistamines unless directed by a doctor. avoid fluoride and chlorine as chlorine and fluoride block iodine receptors in the thyroid gland​

Lupus

Recommendations - eat a diet low in fat, salt and animal protein - this kid of diet is easy on the kidneys. Eat fresh, not canned, pineapple frequently as bromelain, an enzyme present in fresh pineapple, is excellent for reducing inflammations. Avoid the nightshade veggies (peppers, eggplant, tomatoes, and white potatoes, as these foods contain solanin, which can contribute to inflammation and pain. Avoid using birth control pills, as they may cause lupus flare ups.​

While I have the book out ....

arthritis

Essential nutrients: boron (3mg daily DO NOT EXCEED THAT AMOUNT) - a trace mineral required for healthy bones. bromelain (as directed on label) an enzyme that helps to stimulate production for prostaglandins, which help digest protein. glucosomin (as directed - IF YOU'RE ALLERGIC TO SHELL FISH MAKE SURE THAT YOUR GLUCOSOMINE ISN'T DERIVED FROM SHELLFISH. lesson learned. ) important fort the formation of bones, tendons, ligaments, cartilage, and join fluid.

Recommendations - cats claw is helpful for relieving arthritis pain. Cayenne contains a compound called capsaicin that relives pain by inhibiting the release of the neurotransmitter responsible for communicating pain sensations. Man people with arthritis have high levels of copper and iron in their bodies so they should consume foods containing the amino acid histidine like rice, wheat, and rye. Also eat FRESH pineapple frequently, as it contains bromelain, which is excellent for reducing inflammation. Avoid the nightshade veggies (peppers, eggplant, tomatoes, white potatoes, as they contain solanine, which interferes with enzymes in the muscles and may cause pain and discomfort. Do not take iron supplements as iron is suspected of being involved in pain, swelling, and joint destruction - instead get your iron through natural resources like molasses, broccoli, etc.​

Thank you Gracie. that's very helpful and I appreciate it!