Update on oggbashan's health

[TarnishedPenny]

Today I went to see my oncology consultant for an update on the results of my latest scan - the fourth.

To my surprise, and hers, - nothing at all. No signs of recurrence. That isn't supposed to happen with this form of lung cancer but I'll accept it. Four scans and almost a year clearing.

 

[sirhugs]

Today I went to see my oncology consultant for an update on the results of my latest scan - the fourth.

To my surprise, and hers, - nothing at all. No signs of recurrence. That isn't supposed to happen with this form of lung cancer but I'll accept it. Four scans and almost a year clear.

Next scan end of December...

hang in there. Accept the miracle.

 

[KeithD]

Great news.

 

[fifty5]

Today I went to see my oncology consultant for an update on the results of my latest scan - the fourth.

To my surprise, and hers, - nothing at all. No signs of recurrence. That isn't supposed to happen with this form of lung cancer but I'll accept it. Four scans and almost a year clear.

Next scan end of December...

I am so glad to read that, Ogg. Keep pestering us for very much longer!

 

[oggbashan]

The scan covers a lot more than just my lungs:

I have normal prostate, bladder, kidneys, liver, pancreas, and some mild signs of aging in the heart and colon - nothing to worry about.

The only problem found was stones in my gall bladder - I know about them. They were found a decade ago. They are about the size of marbles and sometimes, on a quiet night, when I roll over in bed, I can hear them rattle. At that size, they aren't going anywhere. I'll probably have them when I die - whenever that is.

 

[TxRad]

Keep them doctors scratching their heads.

 

[oggbashan]

Keep them doctors scratching their heads.

I'm causing a rewrite of the text books.

 

[Handley_Page]

I'm causing a rewrite of the text books.

Good for you, Ogg.

 

[TarnishedPenny]

Text books are for starters

I'm causing a rewrite of the text books.

Go for the curriculum!

 

[oggbashan]

Go for the curriculum!

Unlikely. What I have is very rare. None of the hospitals in my county have ever had another case. (My doctor daughter has seen two - both now dead).

But the speech therapist has written up my case on the speech therapists' professional website - with audio and video. My speech muscles worked perfectly.

it was the messages between my brain and them that was scrambled - a very rare sign of a particular form of lung cancer.

 

[SimonDoom]

Today I went to see my oncology consultant for an update on the results of my latest scan - the fourth.

To my surprise, and hers, - nothing at all. No signs of recurrence. That isn't supposed to happen with this form of lung cancer but I'll accept it. Four scans and almost a year clear.

Next scan end of December...

So glad to hear this!

 

[oggbashan]

5 January 2021

Not much has happened for some time because of Covid pressures on our local hospitals.

I was due a scan in December. That hasn't happened yet. Before I have a scan I need a blood test. That hasn't happened either.

Our postal deliveries have been poor - two 'normal ' deliveries since 10 Dec.

I had an automated phone call on Friday to say I had an appointment with a neurologist today - news to me. I should also have had another call to say I had a telephone consultation with an orthoptics specialist yesterday - he just rung out of the blue.

Since my eye problem is caused by lambert-eaton, he can't do anything for me - which I knew. He will be in touch again in three months and he is only seeing people with urgent conditions with recent eye changes - which I'm not.

But today's appointment with the neurologist was face to face. He tested my muscle strength in arms and legs and was surprised with the power I have in all limbs, far more than a 'normal' person of my age should have and NO indication of myasthenia of any sort. But my eyes have deteroriated. I can no longer follow a movement downwards with any accuracy.

His conclusion? I may never have had Lambert-Eaton or any form of Myasthenia. What my symptoms are/were caused by? He doesn't know yet. He asked for a series of blood tests, one of which would identify Lambert-Eaton if present. Because of Covid blood tests are by appointment only and there is a delay but he said, since it was lunchtime, if we went to the phelbotomy department and pleaded - we might...

Five minutes later I had my blood tests done and left them with a tin of chocolates..

He also wants an MRI scan of my head. The CT scan due December won't happen before 31 Jan at the earliest; the MRI scan? Sometime later, perhaps...

But because I am ridiculously fit and stronger than I should be?

I'm not a priority.

Edited for PS: Two years ago when I first saw a hospital consultant to see whether I had had a stroke, he did similar strength tests. He pushed down on my hands and asked me to try to lift them. I did, and lifted 12 stone (about 170 lbs) of doctor off his feet. I still can. His conclusion then? I hadn't had a stroke.

 

[JamesMiehoff]

Great to hear you are still confounding the experts.

Long Live the Great and Powerful Ogg!

James

 

[Erlikkhan]

Don't know you Ogg, but I love your attitude. Keep on trucking. You are an inspiration.

 

[oggbashan]

Good News.

I was told that CT scans would not restart until after 31st Jan but I have an appointment to discuss the non-existent results on the 21st.

But I have just had a phone call. I am booked for a CT scan on next Sunday - 17th. Normally I would need a blood test before that and that is awkward because appointments are rare. But the blood test done on the 5th is enough.

I still need an MRI scan...

 

[Emirus]

I’ve had a phone consultation with a consultant hepatologist (the latest in a line of consultants and tests over the last three months trying to identify my latest problem) and he wants a blood test (that’ll be my eighth in the three months) on monday (tomorrow). Rather than try and send me the required authorisation form, and risk a delay in the post, he said he’d leave the form at the reception desk from where I can collect it and go straight to pathology.

I know you say you’ve had one that will suffice but maybe something to remember for the future should the necessity arise. I once arrived for my three monthly PSA test and I’d forgotten the form. A helpful nurse went and found a doctor and got him to complete the another form authorising a test. I’ve always found, on my many hospital visits, all the NHS staff to be very good and helpful. I assume, I hope, there are NHS staff on this site and reading this.

 

[oggbashan]

I’ve had a phone consultation with a consultation hepatologist (the latest in a line of consultants and tests over the last three months trying to identify my latest problem) and he wants a blood test (that’ll be my eighth in the three months) on monday (tomorrow). Rather than try and send me the required authorisation form, and risk a delay in the post, he said he’d leave the form at the reception desk from where I can collect it and go straight to pathology.

I know you say you’ve had one that will suffice but maybe something to remember for the future should the necessity arise. I once arrived for my three monthly PSA test and I’d forgotten the form. A helpful nurse went and found a doctor and got him to complete the another form authorising a test. I’ve always found, on my many hospital visits, all the NHS staff to be very good and helpful. I assume, I hope, there are NHS staff on this site and reading this.

Thanks for this. My blood test on the 5th was without appointment - just turning up a quiet time and saying please, five minutes after the doctor put the request on line. They retrieved it and took five samples out without leaving a mark. they are very good at what they do.

But each time I take chocolates - perhaps that is recorded on my details?

 

[fifty5]

Three cheers & all the best for the New Year, Og

Today I went to see my oncology consultant for an update on the results of my latest scan - the fourth.

To my surprise, and hers, - nothing at all. No signs of recurrence. That isn't supposed to happen with this form of lung cancer but I'll accept it. Four scans and almost a year clear.

Next scan end of December...

My congratulations at being an exception(al person)

 

[mfan2112]

Stay safe

Glad to hear that you are doing better than predicted. Cancer took my brother in law when he was 19. Nasty little bugger that cancer. Prayers for you and your family.

 

[oggbashan]

I have just had the report from my latest visit to a neurologist. It is two pages of closely typed text.

He doesn't think I ever had Lambert-Eaton Myasthenic Syndrome, even though that was what triggered the scan to see if I had lung cancer.

My muscles are far too strong - 5/5 on all - to have had any form of myasthenia and no one has actually tested for Lambert-Eaton. Tests exist and have/will be done. I had five lots of blood taken for tests on the day I saw him.

I am also booked to have a CT scan on Sunday; a muscle response test on Tuesday; and an MRI scan on 15 February.

A summary of the two pages: he doesn't know what is wrong and is puzzled.


PS: Muscle strengths of 5/5 are not usual for my age even if normally fit.

 

[Blind_Justice]

So... you are an extraordinary gentleman! To your health, Ogg, and may you outlive the roaches.

 

[ElectricBlue]

So... you are an extraordinary gentleman! To your health, Ogg, and may you outlive the roaches.

They say a cockroach will survive a nuclear bomb blast. I reckon Ogg would just take the plutonium core in his fist and say, "Oh no you don't, sunshine; not on my watch."

 

[sirhugs]

I have just had the report from my latest visit to a neurologist. It is two pages of closely typed text.

He doesn't think I ever had Lambert-Eaton Myasthenic Syndrome, even though that was what triggered the scan to see if I had lung cancer.

My muscles are far too strong - 5/5 on all - to have had any form of myasthenia and no one has actually tested for Lambert-Eaton. Tests exist and have/will be done. I had five lots of blood taken for tests on the day I saw him.

I am also booked to have a CT scan on Sunday; a muscle response test on Tuesday; and an MRI scan on 15 February.

A summary of the two pages: he doesn't know what is wrong and is puzzled.


PS: Muscle strengths of 5/5 are not usual for my age even if normally fit.

So what you are saying is that you are abnormally fit?

 

[oggbashan]

So what you are saying is that you are abnormally fit?

Apparently. Just with a host of medical problems.

With my four-wheeled walker I can move faster than one consultant. On muscle strength tests I have lifted two consultants off their feet. After Chemotherapy my lung cancer was eradicated - at least for the last year. It is supposed to be very difficult to treat and fast spreading. Chemotherapy, radiotherapy? Apart from some hair loss (I kept a lot of my beard) I have had no side-effects at all. Loss of appetite? What's that? Nausea? Nope...

I just confuse the medics...

 

[SisterJezabel]

Apparently. Just with a host of medical problems.

With my four-wheeled walker I can move faster than one consultant. On muscle strength tests I have lifted two consultants off their feet. After Chemotherapy my lung cancer was eradicated - at least for the last year. It is supposed to be very difficult to treat and fast spreading. Chemotherapy, radiotherapy? Apart from some hair loss (I kept a lot of my beard) I have had no side-effects at all. Loss of appetite? What's that? Nausea? Nope...

I just confuse the medics...

My favourite type of patient