~Deacon's Fucked up Cancer Thread~

Okay,so after much research, and long discussions with my family, I've made a bold decision.

Considering another harsher round of chemo will not only kill my kidneys, but also ruin the viability of my abdominal lining for PT dialysis, and risking the spread of the colon cancer to other organs like my pancreas, liver, and bladder. (I'm lucky it didnt already)

I have decided to have the tumor cut out immediately, and go with a colostomy bag. I'm sure there will be varying opinions of this, but I've done my research, my son has researched it, and my with has delt with them when she had her own home health care business.

After three years of dealing with the symptoms, I just want them gone. I'm tired of not being able to sleep for any extended period of time. Getting up to go to the bathroom, only to get back into bed and thirty seconds later needing to go again. Most of my sleep coming when I'm sitting up, and lets just face it, The bag would be less work.

Its also ruined my day to day life. It stops me from doing the things I want to do.

So, thats what I'll be discussing with my oncologist later today.

Sound's like a well-thought-out decision so I hope it's viable with your current condition and the doctors treating you.

There's a thirty-something guy on U-Tube who has SOLO sailed to Hawaii and to the UK who uses a colostomy bag. That guy is super active for sure so I don't think having one would phase you at all. Good luck.
 
Okay,so after much research, and long discussions with my family, I've made a bold decision.

Considering another harsher round of chemo will not only kill my kidneys, but also ruin the viability of my abdominal lining for PT dialysis, and risking the spread of the colon cancer to other organs like my pancreas, liver, and bladder. (I'm lucky it didnt already)

I have decided to have the tumor cut out immediately, and go with a colostomy bag. I'm sure there will be varying opinions of this, but I've done my research, my son has researched it, and my with has delt with them when she had her own home health care business.

After three years of dealing with the symptoms, I just want them gone. I'm tired of not being able to sleep for any extended period of time. Getting up to go to the bathroom, only to get back into bed and thirty seconds later needing to go again. Most of my sleep coming when I'm sitting up, and lets just face it, The bag would be less work.

Its also ruined my day to day life. It stops me from doing the things I want to do.

So, thats what I'll be discussing with my oncologist later today.

That is a bold step. Did your doctor recommend it when you talked to him?
 
Assuming the procedure has taken place by now, I hope it was successful and you are getting used to dealing with the new circumstances. Sending good vibes!
 
Okay,so after much research, and long discussions with my family, I've made a bold decision.

Considering another harsher round of chemo will not only kill my kidneys, but also ruin the viability of my abdominal lining for PT dialysis, and risking the spread of the colon cancer to other organs like my pancreas, liver, and bladder. (I'm lucky it didnt already)

I have decided to have the tumor cut out immediately, and go with a colostomy bag. I'm sure there will be varying opinions of this, but I've done my research, my son has researched it, and my with has delt with them when she had her own home health care business.

After three years of dealing with the symptoms, I just want them gone. I'm tired of not being able to sleep for any extended period of time. Getting up to go to the bathroom, only to get back into bed and thirty seconds later needing to go again. Most of my sleep coming when I'm sitting up, and lets just face it, The bag would be less work.

Its also ruined my day to day life. It stops me from doing the things I want to do.

So, thats what I'll be discussing with my oncologist later today.


It sounds like you made the right choice for you. I hope this brings you relief and helps you get back to feeling good. Best of luck to you. :heart:
 
Okay, so it hasnt happened yet I see my surgeon on the 10th to discuss it. I'm not doing chemo again for my colon/rectal tumor. Its doing nothing for my lungs at all, so why bother? Once the tumor is removed, we can attack the lung issues with the proper treatment.

All my doctors are onboard now, so i just need the surgeon to move forward on the 10th.
 
Okay, so it hasnt happened yet I see my surgeon on the 10th to discuss it. I'm not doing chemo again for my colon/rectal tumor. Its doing nothing for my lungs at all, so why bother? Once the tumor is removed, we can attack the lung issues with the proper treatment.

All my doctors are onboard now, so i just need the surgeon to move forward on the 10th.

I’m standing in agreement with your decision and I’ll be praying the best for you. Please know you mean a lot to us here and thank you for these updates on your care.

Oh, and on a personal note, I’m moving forward with my own issues. It’s uncomfortable, but needed. Thank you for being a source of inspiration.
 
praying for you and hope everything is gonna work out for you
hang in there :heart:
 
Okay, so it hasnt happened yet I see my surgeon on the 10th to discuss it. I'm not doing chemo again for my colon/rectal tumor. Its doing nothing for my lungs at all, so why bother? Once the tumor is removed, we can attack the lung issues with the proper treatment.

All my doctors are onboard now, so i just need the surgeon to move forward on the 10th.
I am glad your doctors are all onboard. I hope the meeting on the 10th goes well and you can get rid of that tumor once and for all.
 
Good morning, DV! Thank you for the update. I'm glad all your docs are on board with your decision, it makes things so much easier. :rose:
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:

Keeping you in my thoughts and prayers, Deacon. :heart:
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:

I really hate this for you DV, it sucks. The decision on continuing with chemo is a tough one. I've had people that I know go with either route. Anything else I can offer is that you've got a lot of people here on Lit that think well of you. Anything is possible so do please try to say in touch when you feel up to it.
 
Thoughts and prayers just sounds too trite, but you still have them. Reach out to me if you need anything, ANYTHING. :heart:
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:

Sad to see this.

I wish for you healing, and lots of light and peace.:rose:
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:

That is not the news I was hoping to hear.
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:
Prayers to you sir.
 
Okay, so maybe my last update for a little while :(

Saw my surgeon, and he refused to cut out the tumor. He says I'd probably die during the surgery, and that it would do no good, because I'm now stage four and terminal The only thing that will prolong my life is more chemo.

The guys's bedside manners suck ass to say the least.I told him I wouldnt be back to see him when he tried getting me to make another appt.

So, as you can see, those colonoscopies are important.

How much time do I have left? Who knows, but I'll go on fighting it just like I have been, and hope I end up in remission eventually. I can tell you, facing your own mortality is a real bitch.

Peace and love my friends, never forget that.:heart:

Dear Deacon... We have never talked.
But.. gosh! This is harsh news.

Sending you loving thoughts ❤️
 
Okay, so maybe my last update for a little while :(
Peace and love my friends, never forget that.:heart:

Deacon, I usually have no problem filling a page with my thoughts but this time, my words fail me. They are silent as I am humbled by the battle you are facing each day. We can be so petty in the things we complain about until we see the true struggle of those that put all of their energy into standing up to such a ferocious adversary.

Through your strength to carry on this fight, we see your courage and your spirit. I can only admire the grace and determination you exhibit to all of us.

Prayers, hope and positive thoughts always sent your way!
 
Who knew that years ago when I joined this little corner of the world that I would make friendships that even I can go weeks or months from talking but know that the love and friendship is there. THIS man is one of those people. He has been there for so long for me and having him there has brightened my day.

I am glad we have reconnected and that I have been able to talk with you more and support you through your journey. You truly are the picture of a fighter and the value of that is you have so many people behind you to hold you up and support you through it all with love prayer and ALL the strength we can muster to send your way.

But this right here this thread is the importance of community and knowing what people are about. YEAH it's a sex board but you know what so much more than that as well. Its a board to support those through thick and thin and to know you have a group of people behind you. Remember that daily and know I am just a moment away when you need me. BTW I need that surgeons name and number I have a trip coming with some flip flops I need to take!

:heart:
 
I don’t know what possibly to say, Deac, that could remotely provide comfort. Maybe get a second opinion on the tumor. And my mother-in-law has fought off cancer and its returns for more than 20 years and is in remission. Maybe there’s some hope in that
 
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