~Deacon's Fucked up Cancer Thread~

Okay, so in the middle of the sixth dose as I type this. More side effects are showing up, which makes them happy, but me, not so much, lol. Sensitivity to cold, but not to my ice :) It really hurts my fingers to take ice out of the bag. Feels like pins being driven into my finger tips, lol.

My last blood test labs were really good, which did surprise everyone. My kidney function nearly doubled, and so did my white blood cell count (Due to the improved kidney function.)

I basically cut my protein intake down by two thirds, because I don't need as much as I had been eating. I feel pretty good today, but I am nervous about my PET and CT scans being done next week. It will tell us how well the treatment is working.

Having a project to work on does help, and so does having two of my grandkids around :D

So thats it for now :D

Awwwwwww…I’m happy for you. I know it may not feel the best while going through it, but I’m glad you’re reacting to it rather than not reacting to it. Your body is fighting to recover.

Also, having a picture of each grandkid’s hand in yours individually would be great to keep in your photo album. Once a year on the same date. That would be awesome to see. Or for you specifically to give to your grandkids when they grow older, a picture on the same date of you with them engaged in a hug.

 
Okay, so in the middle of the sixth dose as I type this. More side effects are showing up, which makes them happy, but me, not so much, lol. Sensitivity to cold, but not to my ice :) It really hurts my fingers to take ice out of the bag. Feels like pins being driven into my finger tips, lol.

My last blood test labs were really good, which did surprise everyone. My kidney function nearly doubled, and so did my white blood cell count (Due to the improved kidney function.)

I basically cut my protein intake down by two thirds, because I don't need as much as I had been eating. I feel pretty good today, but I am nervous about my PET and CT scans being done next week. It will tell us how well the treatment is working.

Having a project to work on does help, and so does having two of my grandkids around :D

So thats it for now :D

You are in my thoughts and prayers Deacon.
 
Just checking in on you Deacon.
Congratulations on the newest grandbaby. :heart:
A good family your dad leaves behind prayers for a relaxed, rejoiceful reunion. In december.
Hugs.
S:rose:
 
I start fasting today at around 10am for my scans tomorrow. Still a bit nervous about it, but I'm hoping I get good news.

So anyway, nothing new to report as far as the treatment, other than the fatigue. They said it would get worse, and I guess I didn't know what really bad was, lol. Now I'm starting to, lol.

Peace to all,

DV
 
I start fasting today at around 10am for my scans tomorrow. Still a bit nervous about it, but I'm hoping I get good news.

So anyway, nothing new to report as far as the treatment, other than the fatigue. They said it would get worse, and I guess I didn't know what really bad was, lol. Now I'm starting to, lol.

Peace to all,

DV

:heart::heart::heart:
 
*fluffs your pillow and urges you to take a couple of naps today*

You don't feel the hunger when you're sleeping. Hang in there. :heart:
 
I start fasting today at around 10am for my scans tomorrow. Still a bit nervous about it, but I'm hoping I get good news.

So anyway, nothing new to report as far as the treatment, other than the fatigue. They said it would get worse, and I guess I didn't know what really bad was, lol. Now I'm starting to, lol.

Peace to all,

DV

Peace and strength to you!
 
I start fasting today at around 10am for my scans tomorrow. Still a bit nervous about it, but I'm hoping I get good news.

So anyway, nothing new to report as far as the treatment, other than the fatigue. They said it would get worse, and I guess I didn't know what really bad was, lol. Now I'm starting to, lol.

Peace to all,

DV

As bad as it may be, think of your cheer squad here that are rooting for you to stay strong. It may be a bit difficult in the moment of pain, please know your being strong is inspiring many.
 
praying for good news from your scans today!
Thinking of you.
hugs
 
Just a quick update.

So my first scans came out crappy due to a bad calibration or some shit. I redid them yesterday, and I got a chance to talk with my kidney doctor. (Oh, I get the new results on Thursday) But my newest labs showed my kidney function as 22.5% which is huge news. That technically takes me out of stage four kidney failure.

So we're putting off the vascular surgeon for my fistula, because insurance wont pay for it on anything above 18% function. So, instead of the chemo killing my kidneys, I'm doing fine :D

Things I changed were, losing weight, eliminating half my protein intake, and targeting my blood glucose at 100 instead of anything below 150. It requires more monitoring, which mean I have to pay cash for extra test strips, but its proven to be worth it.

My white blood cell count is even up, so I'm a happy camper. Seven treatments down, five to go. Now lets just hope its working :)
 
Just a quick update.

So my first scans came out crappy due to a bad calibration or some shit. I redid them yesterday, and I got a chance to talk with my kidney doctor. (Oh, I get the new results on Thursday) But my newest labs showed my kidney function as 22.5% which is huge news. That technically takes me out of stage four kidney failure.

So we're putting off the vascular surgeon for my fistula, because insurance wont pay for it on anything above 18% function. So, instead of the chemo killing my kidneys, I'm doing fine :D

Things I changed were, losing weight, eliminating half my protein intake, and targeting my blood glucose at 100 instead of anything below 150. It requires more monitoring, which mean I have to pay cash for extra test strips, but its proven to be worth it.

My white blood cell count is even up, so I'm a happy camper. Seven treatments down, five to go. Now lets just hope its working :)

That's wonderful news Deacon. :kiss:
 
Just a quick update.

So my first scans came out crappy due to a bad calibration or some shit. I redid them yesterday, and I got a chance to talk with my kidney doctor. (Oh, I get the new results on Thursday) But my newest labs showed my kidney function as 22.5% which is huge news. That technically takes me out of stage four kidney failure.

So we're putting off the vascular surgeon for my fistula, because insurance wont pay for it on anything above 18% function. So, instead of the chemo killing my kidneys, I'm doing fine :D

Things I changed were, losing weight, eliminating half my protein intake, and targeting my blood glucose at 100 instead of anything below 150. It requires more monitoring, which mean I have to pay cash for extra test strips, but its proven to be worth it.

My white blood cell count is even up, so I'm a happy camper. Seven treatments down, five to go. Now lets just hope its working :)

Well I keep praying, so you should be fine. :):heart:
 
This is great news!

Those changes really made a difference! What is your protein intake?
 
This is great news!

Those changes really made a difference! What is your protein intake?

I actually dont keep track of the numbers, I just halved all the things with protien in them, like steak, hamburger, chicken, milk, eggs, things like that. I eat more green beans, onions, salad, tomatoes, pears, strawberries, things like that.

My last A1c test was 6.3, down from 8.3 six weeks ago, so I'm on the right track (plus, I lost 14 pounds in two weeks)
 
What a great update!! I'm so happy for you and glad you are doing well. Keep up the difficult and fantastic work you are doing. We all know it's not easy and you've been so strong from day one. You're a force to be reckoned with my dear.

The one thing you forgot to mention was your "Naughty Score"...I'm sure that's been on the rise! :devil:

Thinking of you and sending all sorts of positivity and prayers your way. :rose:
 
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I actually dont keep track of the numbers, I just halved all the things with protien in them, like steak, hamburger, chicken, milk, eggs, things like that. I eat more green beans, onions, salad, tomatoes, pears, strawberries, things like that.

My last A1c test was 6.3, down from 8.3 six weeks ago, so I'm on the right track (plus, I lost 14 pounds in two weeks)

WOW!!

Those numbers are great!
 
I’m so happy for you. I’m glad you’re doing so much better. Your numbers are showing better and your body change is all the proof needed to show things are working in your favor🌹
 
I am happy to see your numbers are improving and I am glad you are staying positive. You sir are an inspiration of how to fight and love you for it. Stay healthy and positive and know you have so much support. Big hugs
 
Just a quick update.

So my first scans came out crappy due to a bad calibration or some shit. I redid them yesterday, and I got a chance to talk with my kidney doctor. (Oh, I get the new results on Thursday) But my newest labs showed my kidney function as 22.5% which is huge news. That technically takes me out of stage four kidney failure.

So we're putting off the vascular surgeon for my fistula, because insurance wont pay for it on anything above 18% function. So, instead of the chemo killing my kidneys, I'm doing fine :D

Things I changed were, losing weight, eliminating half my protein intake, and targeting my blood glucose at 100 instead of anything below 150. It requires more monitoring, which mean I have to pay cash for extra test strips, but its proven to be worth it.

My white blood cell count is even up, so I'm a happy camper. Seven treatments down, five to go. Now lets just hope its working :)

Oh wow…this really makes my heart so happy to hear…keep doing what you are doing and continue to nurture yourself…sending hugs and prayers for continued healing…we are all here rooting for you:heart::rose::)
 
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