~Deacon's Fucked up Cancer Thread~

[LadyJS]

I love hearing positive things about you, it's great news

 

[Smoothshavendad]

Such wonderful news, D! Keep up the great work!

 

[sallycee]

Good to hear things are going so well!

 

[Deacon_Voss]

So I just got out of the hospital after a two day stay. At first they thought that I had a stroke, after a ton of scans and blood work, they found nothing, and blamed it on my chemo. What happened was I couldnt stand up, and I couldnt even sit up straight. I kept falling to my left side.

So today they released me, and thats whan the news got really bad. My oncologist called and gave m the results of my scans. The tumor has grown rather than shrank, so its back to square one, just with an even bigger tumor. I meet with him soon to discuss a new game plan, but thats it for now.

 

[munch2much]

So I just got out of the hospital after a two day stay. At first they thought that I had a stroke, after a ton of scans and blood work, they found nothing, and blamed it on my chemo. What happened was I couldnt stand up, and I couldnt even sit up straight. I kept falling to my left side.

So today they released me, and thats whan the news got really bad. My oncologist called and gave m the results of my scans. The tumor has grown rather than shrank, so its back to square one, just with an even bigger tumor. I meet with him soon to discuss a new game plan, but thats it for now.

Hey, I’m really feeling for you.
I don’t like bothering people with suggesting advice when I know nothing myself.
But I do know that doctors are poorly trained on nutrition and yet this can help arm your body to fight.

There is a charity dedicated to evaluation of nutritional studies and has advice on foods that might help you. It’s not sponsored, so unbiased.

If you might find it helpful take a look. This link is for their search page. Just type in a key word and you will find info under cancer, colon etc
https://nutritionfacts.org/videos/

But either way, I wish you the absolute best

 

[BlackCaramelCreme]

DV, I’m so sorry for this to have happened to you. This means I will have to double down in my prayers for you. Please know myself and others on this site, we are all here for you.

 

[Deacon_Voss]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

 

[Dribble]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

Unfortunately days like these happen...and they won't be the last. But they shall pass.

Lessons never stop coming into our lives. Everyday we can incorporate what we learned from yesterday. Sure...those lessons only apply in the moment...but they can be filed away for later if necessary.

Above all...remember the positives when we feel down. You are a good person...sharing this journey with others...to give them strength if they have to walk a similar path...proves this point. Thank you for being strong

 

[Anastasia1999]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

I am so sorry and am thinking of you dear Deacon

 

[scotluvsoral]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

I'm sorry that the tumor has grown, Deacon. But I am glad you are taking more control. I have always had my best results when I had some real control over what was happening with my health care! Good Luck and know you are in our prayers!

 

[barefootgirl69]

Well, FUCK!

This isn't the kind of news any of us was hoping for. I can't imagine how you're feeling, but, you're right. Take some time to regroup and wrap your head around it. Prepare to battle this thing and many of us will be holding you up in prayer. For strength and for healing.

 

[Jake069258]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

Thoughts and prayers going your way!!!

 

[beachbaby179]

I don't have the words right now. I'll contact you when I do. For now, just know I love you.

 

[SirConradPeckereye]

Wow sorry to hear the bad news. Go be more involved and I am praying things start to go better for you!

 

[NastyNyx]

I'm sorry Deacon

 

[fungatorgurl101]

You know us girls love you and you know who we are but I just have to say that my heart hurts but we will fight further with you. Let us know what we can do and how we can do it and we will make that happen. In the mean time hugs for you and all of your family.

 

[Biglove79]

Hey Deacon. That’s really crap, I’m sorry. I’ve been there with others. The only advice I can offer is be kind to yourself. Rest when you can, eat well, and the positivity will come. Every good thing you do for yourself reinforces positivity. The body heals better in a positive state.

We don’t know each other, but I’m rooting for you!

J

 

[Stillrandy]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

I am with you on taking charge of your own medical destiny. Time was when we (I) just did whatever the doctor said or did without questioning. Not any more. Of course we have the Internet as a tool that we did not have years ago. Now I do a lot of research and challenge a doctor with questions and demands for explanations; often some 'negotiations' as to what I will or will not comply with. Of course, the doctor has the say to write the prescriptions or order the tests, but first he or she is going to have to explain to me why, where, when, how, etc. Their eyes roll when I start down the list I made before the visit, but it is my body, my health after all.

Best wishes to you sir!

 

[LadyJS]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

This is not what I, and others, wanted to hear. I'm still praying for you to beat this

 

[sallycee]

Right now I feel gutted. My positivity is in the shitter. It doesnt mean I'm giving up, it just means I need a chance to regroup in my own head.

It also means I'm no longer taking a back seat to all these doctors. I'm going to have a bigger say in my treatment and quit trusting that they know best. Had I gone with my gut feelings things would be different now. So first thing tomorrow my surgeon gets fired and replaced. (discussed in depth with my family)

Thinking of you and keeping you in my prayers, sending positive thoughts and vibes......

 

[Endless_Night]

 

[Deacon_Voss]

Okay,so after much research, and long discussions with my family, I've made a bold decision.

Considering another harsher round of chemo will not only kill my kidneys, but also ruin the viability of my abdominal lining for PT dialysis, and risking the spread of the colon cancer to other organs like my pancreas, liver, and bladder. (I'm lucky it didnt already)

I have decided to have the tumor cut out immediately, and go with a colostomy bag. I'm sure there will be varying opinions of this, but I've done my research, my son has researched it, and my with has delt with them when she had her own home health care business.

After three years of dealing with the symptoms, I just want them gone. I'm tired of not being able to sleep for any extended period of time. Getting up to go to the bathroom, only to get back into bed and thirty seconds later needing to go again. Most of my sleep coming when I'm sitting up, and lets just face it, The bag would be less work.

Its also ruined my day to day life. It stops me from doing the things I want to do.

So, thats what I'll be discussing with my oncologist later today.

 

[BlackCaramelCreme]

I am hoping and praying for this to be the cure-all decision for you. You have my support, my prayers and the sincerity that goes with it.

 

[scotluvsoral]

Okay,so after much research, and long discussions with my family, I've made a bold decision.

Considering another harsher round of chemo will not only kill my kidneys, but also ruin the viability of my abdominal lining for PT dialysis, and risking the spread of the colon cancer to other organs like my pancreas, liver, and bladder. (I'm lucky it didnt already)

I have decided to have the tumor cut out immediately, and go with a colostomy bag. I'm sure there will be varying opinions of this, but I've done my research, my son has researched it, and my with has delt with them when she had her own home health care business.

After three years of dealing with the symptoms, I just want them gone. I'm tired of not being able to sleep for any extended period of time. Getting up to go to the bathroom, only to get back into bed and thirty seconds later needing to go again. Most of my sleep coming when I'm sitting up, and lets just face it, The bag would be less work.

Its also ruined my day to day life. It stops me from doing the things I want to do.

So, thats what I'll be discussing with my oncologist later today.

Tough choice but sounds like the right one. Pulling for you, Deacon!!

 

[hotoldrguy]

Okay,so after much research, and long discussions with my family, I've made a bold decision.

Considering another harsher round of chemo will not only kill my kidneys, but also ruin the viability of my abdominal lining for PT dialysis, and risking the spread of the colon cancer to other organs like my pancreas, liver, and bladder. (I'm lucky it didnt already)

I have decided to have the tumor cut out immediately, and go with a colostomy bag. I'm sure there will be varying opinions of this, but I've done my research, my son has researched it, and my with has delt with them when she had her own home health care business.

After three years of dealing with the symptoms, I just want them gone. I'm tired of not being able to sleep for any extended period of time. Getting up to go to the bathroom, only to get back into bed and thirty seconds later needing to go again. Most of my sleep coming when I'm sitting up, and lets just face it, The bag would be less work.

Its also ruined my day to day life. It stops me from doing the things I want to do.

So, thats what I'll be discussing with my oncologist later today.

You need to do what is best for you. It sounds like you have done the research to make an intelligent decision. I hope all goes well with the oncologist call.