πŸ†β€οΈβ€πŸ©ΉπŸ† Dicknations for Sassy! Updates & Get Well Wang πŸ†β€οΈβ€πŸ©ΉπŸ†

Mentally they are doing everything they can to make sure my anxiety is as high as possible (which also fucks with my glucose numbers) My palliative care nurse has said "do deep breathing exercises 4 times a day!!" :rolleyes:
They've called to tell me that they cannot move forward with either surgery or chemo until my diabetes is more managed. Besides myself (I fired off 5 pretty pissed off emails and one complaint to customer service) both my diabetes nurse and the palliative care nurse are extremely angry. There is no miracle cure to diabetes (no everyone would be okay) so my nurse reached out to the Doctor and asked him how long he planned to make me wait until we figured out my perfect insulin dosages. While I wait. My tumor grows. I'm so angry I want to spit nails. Of course, he has not replied to me yet.
I am at least grateful for those 2 nurses who've been working hard behind the scenes and with me to help me get to where I need to be. (Besides the nurse telling me to do deep breathing exercises.)

So, for now. I sit here and my tumor grows. 😭
 
Mentally they are doing everything they can to make sure my anxiety is as high as possible (which also fucks with my glucose numbers) My palliative care nurse has said "do deep breathing exercises 4 times a day!!" :rolleyes:
They've called to tell me that they cannot move forward with either surgery or chemo until my diabetes is more managed. Besides myself (I fired off 5 pretty pissed off emails and one complaint to customer service) both my diabetes nurse and the palliative care nurse are extremely angry. There is no miracle cure to diabetes (no everyone would be okay) so my nurse reached out to the Doctor and asked him how long he planned to make me wait until we figured out my perfect insulin dosages. While I wait. My tumor grows. I'm so angry I want to spit nails. Of course, he has not replied to me yet.
I am at least grateful for those 2 nurses who've been working hard behind the scenes and with me to help me get to where I need to be. (Besides the nurse telling me to do deep breathing exercises.)

So, for now. I sit here and my tumor grows.
 
I think the tumor is patiently waiting for the glucose issue to be resolved too before it starts to grow again!
 
True story time. Ten or so years ago, my father-in-law was diagnosed with an inoperable terminal form of leukemia. So...he made his bucket list...did it...and changed his diet to a mostly plant-based diet. Earlier this year, they decided it was time for the chemo. It was not to cure him...but to extend his life a few more years.

He just finished it last week...or maybe the week before. And they told him he will most likely die from old age...not the cancer. We have come so far. Never...ever...give up hope.
 
Mentally they are doing everything they can to make sure my anxiety is as high as possible (which also fucks with my glucose numbers) My palliative care nurse has said "do deep breathing exercises 4 times a day!!" :rolleyes:
They've called to tell me that they cannot move forward with either surgery or chemo until my diabetes is more managed. Besides myself (I fired off 5 pretty pissed off emails and one complaint to customer service) both my diabetes nurse and the palliative care nurse are extremely angry. There is no miracle cure to diabetes (no everyone would be okay) so my nurse reached out to the Doctor and asked him how long he planned to make me wait until we figured out my perfect insulin dosages. While I wait. My tumor grows. I'm so angry I want to spit nails. Of course, he has not replied to me yet.
I am at least grateful for those 2 nurses who've been working hard behind the scenes and with me to help me get to where I need to be. (Besides the nurse telling me to do deep breathing exercises.)

So, for now. I sit here and my tumor grows. 😭
That's incredibly frustrating. Part of me wants to get on a plane and bring "the boys" and kick some surgeon ass.
But we probably want him healthy when he operates...
Hugs.
 
Mentally they are doing everything they can to make sure my anxiety is as high as possible (which also fucks with my glucose numbers) My palliative care nurse has said "do deep breathing exercises 4 times a day!!" :rolleyes:
They've called to tell me that they cannot move forward with either surgery or chemo until my diabetes is more managed. Besides myself (I fired off 5 pretty pissed off emails and one complaint to customer service) both my diabetes nurse and the palliative care nurse are extremely angry. There is no miracle cure to diabetes (no everyone would be okay) so my nurse reached out to the Doctor and asked him how long he planned to make me wait until we figured out my perfect insulin dosages. While I wait. My tumor grows. I'm so angry I want to spit nails. Of course, he has not replied to me yet.
I am at least grateful for those 2 nurses who've been working hard behind the scenes and with me to help me get to where I need to be. (Besides the nurse telling me to do deep breathing exercises.)

So, for now. I sit here and my tumor grows. 😭
Ugh you're caught in a vicious cycle there. The more you stress the more your numbers go up. The higher your numbers the longer you have to wait. The longer you wait the more you stress. This really sucks. I'm a little surprised that they can't keep numbers stable during the surgery.. modern medicine and all that. And then help you manage your numbers through the chemo afterwards. But you say they are working on it now, figuring out the dosages? That's good. Hopefully it won't take too long. Fingers crossed!!
 
True story time. Ten or so years ago, my father-in-law was diagnosed with an inoperable terminal form of leukemia. So...he made his bucket list...did it...and changed his diet to a mostly plant-based diet. Earlier this year, they decided it was time for the chemo. It was not to cure him...but to extend his life a few more years.

He just finished it last week...or maybe the week before. And they told him he will most likely die from old age...not the cancer. We have come so far. Never...ever...give up hope.
This is really uplifting, thank you for sharing it.
 
No one wants to hear this, but I believe in the power of anger. I think it gets a bad rap.
Being angry all the time wears you down, but a little rage every now and then is pretty cleansing.
I really do believe it helps juice up your anti-inflammatories and greases your wheels.

Use that. For what it’s worth. ❀️
 
No one wants to hear this, but I believe in the power of anger. I think it gets a bad rap.
Being angry all the time wears you down, but a little rage every now and then is pretty cleansing.
I really do believe it helps juice up your anti-inflammatories and greases your wheels.

Use that. For what it’s worth. ❀️
That’s an interesting thought!
 
No one wants to hear this, but I believe in the power of anger. I think it gets a bad rap.
Being angry all the time wears you down, but a little rage every now and then is pretty cleansing.
I really do believe it helps juice up your anti-inflammatories and greases your wheels.

Use that. For what it’s worth. ❀️
I find punching bags very helpful in this! πŸ₯Š
 
I think the tumor is patiently waiting for the glucose issue to be resolved too before it starts to grow again!
Well. If it is a stupid tumor. Yes. Sugar feeds cancer. So, in a normal state. No. But one can hope it's a little duh.
True story time. Ten or so years ago, my father-in-law was diagnosed with an inoperable terminal form of leukemia. So...he made his bucket list...did it...and changed his diet to a mostly plant-based diet. Earlier this year, they decided it was time for the chemo. It was not to cure him...but to extend his life a few more years.

He just finished it last week...or maybe the week before. And they told him he will most likely die from old age...not the cancer. We have come so far. Never...ever...give up hope.
That is a very sweet story Dribble. Thank you. β™₯️
That's incredibly frustrating. Part of me wants to get on a plane and bring "the boys" and kick some surgeon ass.
But we probably want him healthy when he operates...
Hugs.
Technically this has been the Oncologists call. I think the surgeon comes back from vacation this week and I hope to get his opinion in here.
I don't hang in the playground much so I did not know about this thread. However I think so much of Sassy that I will try to help. Didn't know that this could be called pallative care.

https://ibb.co/mFzZ3dR
Yes. I feel much better! :kiss: You are truly a sweetheart zhutt.
Ugh you're caught in a vicious cycle there. The more you stress the more your numbers go up. The higher your numbers the longer you have to wait. The longer you wait the more you stress. This really sucks. I'm a little surprised that they can't keep numbers stable during the surgery.. modern medicine and all that. And then help you manage your numbers through the chemo afterwards. But you say they are working on it now, figuring out the dosages? That's good. Hopefully it won't take too long. Fingers crossed!!
The surgery part does surprise me a little too. Especially since I will come out of it with a feeding tube.
The Chemo is because steroids will be in play and those are known to mess with your numbers. It's harder to control something that is jumping all over.
No one wants to hear this, but I believe in the power of anger. I think it gets a bad rap.
Being angry all the time wears you down, but a little rage every now and then is pretty cleansing.
I really do believe it helps juice up your anti-inflammatories and greases your wheels.

Use that. For what it’s worth. ❀️
I totally agree with you. I feel like my glucose levels are like my emotions. Jumping all over the place. But the anger can definitely help get rid of the stuff I keep trying to hold back. Deep breathing isn't making me stress less.
I find punching bags very helpful in this! πŸ₯Š
I tried one years ago. Man I'm a wimp. πŸ˜‚
 
Did they do a biopsy on this tumor? Is it hormone sensitive??
 
Mentally they are doing everything they can to make sure my anxiety is as high as possible (which also fucks with my glucose numbers) My palliative care nurse has said "do deep breathing exercises 4 times a day!!" :rolleyes:
They've called to tell me that they cannot move forward with either surgery or chemo until my diabetes is more managed. Besides myself (I fired off 5 pretty pissed off emails and one complaint to customer service) both my diabetes nurse and the palliative care nurse are extremely angry. There is no miracle cure to diabetes (no everyone would be okay) so my nurse reached out to the Doctor and asked him how long he planned to make me wait until we figured out my perfect insulin dosages. While I wait. My tumor grows. I'm so angry I want to spit nails. Of course, he has not replied to me yet.
I am at least grateful for those 2 nurses who've been working hard behind the scenes and with me to help me get to where I need to be. (Besides the nurse telling me to do deep breathing exercises.)

So, for now. I sit here and my tumor grows. 😭
That is terrible news. I am glad you have those nurses standing up for you. Did they give you any idea what they consider "managed"? I can understand why they would hold off if the risk is too high but they also need to get that thing out of you. :mad:
I hope they straighten this out quickly and get you that surgery,
 
Did they do a biopsy on this tumor? Is it hormone sensitive??
My pancreatic cancer? They did a biopsy. Yes.
That is terrible news. I am glad you have those nurses standing up for you. Did they give you any idea what they consider "managed"? I can understand why they would hold off if the risk is too high but they also need to get that thing out of you. :mad:
I hope they straighten this out quickly and get you that surgery,
That is one of the questions the nurse wants to find out. Where I need to be to consider surgery.
 
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