🍆❤️‍🩹🍆 Dicknations for Sassy! Updates & Get Well Wang 🍆❤️‍🩹🍆

[Deprived_in_AZ]

What Tali said strong and wonderful. Though you’re probably tired of having to be strong by now. And also simply tired.

I wish last week’s news had been better. I wish that one nurse didn’t give you such a load of BS. I hope the surgeon can figure out what’s going on, and I really hope he can fix you up without too much trouble.

 

[PlanetaryNebula]

Sassy, how are you? Sending you love and hugs and STRENGTH. Cuz you can lean on me. When your not strong, I’ll be your friend, I’ll help you carry on

 

[SassySheDevil]

Congratulations!
You are such a sweet looking lady. Beautiful pic.

Maybe I stepped out of line...are you not happy losing the weight part in your dilemma?

No not at all. I've wanted to lose weight for a while, but with all that is coming up, and with the lack of food (nutrition) I cannot eat right now. They are concerned with me losing too much weight. So. Overweight Sassy is happy. Sick and needs my overweightness Sassy. A tiny bit worried. I know that once I start Chemo. I will most likely lose more and Overweight Sassy is only 5 pounds from her goal. I don't want to see 100# Sassy again. It's odd. For as short as I am. The weight chart people think I should weigh around 100 pounds. I got down to 126 pounds many many years ago and even I looked in the mirror and grossed myself out. So, I really don't want to lose too much weight.
But yes. For now. I'm happy. I will most likely change my mind in a few months.

 

[SassySheDevil]

I can't imagine what you and your family are going through. I had my right knee replaced at the end of April and the recovery has been painful, but it's nothing compared to what you are experiencing. I did have superlative care before during and after my surgery, so I had none of the frustration and anger you are bearing along with your illness. Just take it one step at a time, one day at a time. You're probably tired of hearing that, but it's all you can do.

I'm never tired of people caring.

I think scars are sexy in their own right. I appreciate the strength they represent.

I also get not wanting to lead with them all the time though. In that case I think it just means once you feel stronger, it’s a fantastic reason to go pick out new lingerie that accentuates the things you love most and downplays the scars

My gf wants me to go get a zipper tattoo. I will probably not do that. But maybe something. I still haven't gotten anything over my Lumpectomy scar either and I thought I would as soon as that year was up from radiation. They don't want you to get a tattoo until you've been done with radiation for a year. (at least not on the area you are doing radiation.)

There is also scar therapy PT. A lot of mastectomy patients go that route. I have a poorly healed c section scar so when I have my mastectomy, I’m going to PT. They so scar massage to break up the hard tissue.

I remember hearing about this with the breast cancer, but I forgot about it. Thank you for the reminder.

What Tali said strong and wonderful. Though you’re probably tired of having to be strong by now. And also simply tired.

I wish last week’s news had been better. I wish that one nurse didn’t give you such a load of BS. I hope the surgeon can figure out what’s going on, and I really hope he can fix you up without too much trouble.

I really am. -Tired of being strong.
Thank you, Dee. I really hope I get some answers tomorrow. I'm tired of being in so much pain.

Sassy, how are you? Sending you love and hugs and STRENGTH. Cuz you can lean on me. When your not strong, I’ll be your friend, I’ll help you carry on

Thank you Nebs
For it won't be long til I'm gonna need somebody to lean on

 

[PlanetaryNebula]

I'm never tired of people caring.

My gf wants me to go get a zipper tattoo. I will probably not do that. But maybe something. I still haven't gotten anything over my Lumpectomy scar either and I thought I would as soon as that year was up from radiation. They don't want you to get a tattoo until you've been done with radiation for a year. (at least not on the area you are doing radiation.)

I remember hearing about this with the breast cancer, but I forgot about it. Thank you for the reminder.

I really am. -Tired of being strong.
Thank you, Dee. I really hope I get some answers tomorrow. I'm tired of being in so much pain.


Thank you Nebs
For it won't be long til I'm gonna need somebody to lean on

Just callllll me when you need a friend. I mean it. Well you know. Pm me

 

[ccs29745]

Big sass, little sass, just don't lose your spunkiness kiddo. We all love ya and face it, the internet would be boring without you.

 

[SassySheDevil]

Just callllll me when you need a friend. I mean it. Well you know. Pm me

Thank you. I appreciate that. I'm trying to deal with my anger so I'm not such a mess at communicating.

 

[ccs29745]

Thank you. I appreciate that. I'm trying to deal with my anger so I'm not such a mess at communicating.

Just vent it out love, we will understand. Better to let it out than to keep it in.

 

[PlanetaryNebula]

Thank you. I appreciate that. I'm trying to deal with my anger so I'm not such a mess at communicating.

You can always yell at me

 

[SassySheDevil]

Big sass, little sass, just don't lose your spunkiness kiddo. We all love ya and face it, the internet would be boring without you.

Thank you. - I just pictured all those who dislike me rolling their eyes. But I am grateful you feel that way.

Just vent it out love, we will understand. Better to let it out than to keep it in.

It would turn into a book.

You can always yell at me

haha you are the last person I'd want to yell at.

 

[AveryElle]

Thank you. - I just pictured all those who dislike me rolling their eyes. But I am grateful you feel that way.

fuck em.
They couldn’t handle half of what you’re going through. The drama they make up in their minds is enough to knock them down.
It’s weird - it’s hard for me connect to other cancer patients who haven’t needed chemo or radical surgery. But I still feel more connected to them than the average human because we do share the same fears.

Please make sure you’ve got access to therapy and PT because they will help. Fuck anyone else. It’s exhausting being strong and ‘a warrior’ in a fight you never asked for. You have too much life left, though, to let this be what does you in.

 

[SassySheDevil]

fuck em.
They couldn’t handle half of what you’re going through. The drama they make up in their minds is enough to knock them down.
It’s weird - it’s hard for me connect to other cancer patients who haven’t needed chemo or radical surgery. But I still feel more connected to them than the average human because we do share the same fears.

Please make sure you’ve got access to therapy and PT because they will help. Fuck anyone else. It’s exhausting being strong and ‘a warrior’ in a fight you never asked for. You have too much life left, though, to let this be what does you in.

Cancer is something I've learned brings people closer or separates them. Each cancer has shown me that some people truly don't know what to say to me so they just slowly check out. Others I wouldn't have expected truly step up to offer such kindness.
You have been that person and I really appreciate it.
I agree though. Sometimes it is just a weird feeling to describe what you are thinking and feeling but yes. Other cancer patients understand with few words.
Overall. I appreciate those who care enough to offer their care and concern. It helps a lot. Even if I am not feeling like reaching out. Simple thoughts mean the world to me.

 

[hotwords229_A]

Even if I am not feeling like reaching out. Simple thoughts mean the world to me.

Your only job right now is to focus all you have on being happy, positive and loved. Even if you only get one split second of any of those a day (for now), it’s the most important thing.

Cry, yell, scream, punch somebody (hopefully someone who deserves it but, meh, either way ) feel tired, scared, nervous, sick, whatever you need to do, but find that smirk, smile or even laugh anywhere you can. It matters.

You have no obligation to reach out to us or anyone. It’s all about YOU!
At least, until you blow through this thing, as you will, then we need to see some titties!

Until then, Sassy, do whatever you have to do. But GET YOUR MIRACLE!!!

You have more than earned it.

 

[SassySheDevil]

Your only job right now is to focus all you have on being happy, positive and loved. Even if you only get one split second of any of those a day (for now), it’s the most important thing.

Cry, yell, scream, punch somebody (hopefully someone who deserves it but, meh, either way ) feel tired, scared, nervous, sick, whatever you need to do, but find that smirk, smile or even laugh anywhere you can. It matters.

You have no obligation to reach out to us or anyone. It’s all about YOU!
At least, until you blow through this thing, as you will, then we need to see some titties!

Until then, Sassy, do whatever you have to do. But GET YOUR MIRACLE!!!

You have more than earned it.

You always find a way to make me tear up. Thank you!! I appreciate you.

 

[Joxlrg]

Good luck today Sassy

 

[n8Romantic]

Good morning, Sassy. Fingers crossed this new week brings you more compassionate care, effective pain control, and some good news for a change. We haven’t really interacted much but when we have it’s been enjoyable and informative for me. It’s impossible not to notice the Lit folks you’ve made such a positive influence, and are now pouring out their supporting love and affection. You deserve the love.

 

[SassySheDevil]

Good morning, Sassy. Fingers crossed this new week brings you more compassionate care, effective pain control, and some good news for a change. We haven’t really interacted much but when we have it’s been enjoyable and informative for me. It’s impossible not to notice the Lit folks you’ve made such a positive influence, and are now pouring out their supporting love and affection. You deserve the love.

I appreciate the love. I know I have had my share of times of being a dick and have hurt people over the years, but I definitely appreciate the love.

I have always enjoyed our conversations also.

 

[SassySheDevil]

So, the appointment went well today. My surgeon was in a good mood and super happy. He said that he was happy with how my wound is healing (it has closed more in the last week) That he now wants me to get in touch with the Oncologist to get the ball rolling for Chemo. I told him they told me he's booking out 2 months now. They said that if it takes that long to get in and see him, we'll have to find a different Oncologist.
So, at least I started off my week on a positive note. He told me that he expected me to have pain and reminded me that when we talked about the surgery, we discussed that this could take up to 6 months to heal. So, the nurses being worried, was not something he shared.
Oncology next. Well that and getting a port. But I'm going to schedule that after I see how long it'll take to get in to see the Oncologist.

 

[ccs29745]

So, the appointment went well today. My surgeon was in a good mood and super happy. He said that he was happy with how my wound is healing (it has closed more in the last week) That he now wants me to get in touch with the Oncologist to get the ball rolling for Chemo. I told him they told me he's booking out 2 months now. They said that if it takes that long to get in and see him, we'll have to find a different Oncologist.
So, at least I started off my week on a positive note. He told me that he expected me to have pain and reminded me that when we talked about the surgery, we discussed that this could take up to 6 months to heal. So, the nurses being worried, was not something he shared.
Oncology next. Well that and getting a port. But I'm going to schedule that after I see how long it'll take to get in to see the Oncologist.

Glad to hear some good news finally. Hopefully the appointments will happen sooner than later so you can heal faster.

 

[hairball18]

Yeaaaaaaaaaa. That sounds like a step in the right direction.

 

[SassySheDevil]

Glad to hear some good news finally. Hopefully the appointments will happen sooner than later so you can heal faster.

Yeaaaaaaaaaa. That sounds like a step in the right direction.

Thank you both!!

 

[lakesailer_mi]

Sorry. This will most likely be long.

When I left the hospital, I was given that news I did not want to hear. 12 hours of surgery and "I'm sorry. We were not able to get it all. Part of it is laying up against blood vessels." To make matters worse, half my lymph nodes tested positive so, I am stage 3 now.
"We need to hurry and get you into chemo" -- Oops. Now your incision has ripped, and we have to heal you first.

Here I sit 5 weeks later still trying to deal with my incision which I am the one taking care of it now that the wound vac is off.
I emailed the wound care Nurse this week to tell her I wasn't seeing as much improvement as when I had the wound vac on and was concerned this was slowing me down and I didn't want to keep packing it like this if it was slowing me down. I asked if the wound vac needed to go back on. I told her I was also running out of supplies (which I knew were expensive) I asked if "assaulting it" everyday was making it worse. BTW. Be careful who you use this choice of words to. She apparently got triggered.
She emailed back and I could tell she was angry. She said "if by taking showers every day is what you are calling assaulting. Most would say 2 showers a day is better and we're only asking you to take 1. Sam (other wound care nurse) and I agree that taking showers every day is the best course of action."
That was basically it.
She didn't address supplies; she didn't address if she thought I should come in and see her again. I have this white layer of biofilm on the wound and each time I go in, they basically cut it off. I told her that it has come back, and I wasn't sure if she wanted to cut it off again. She said "no, it'll sluff off in the shower" (but yet it's not, even with q-tip help) She just repeated that it would come off in the shower.
So, I went on Amazon and ordered supplies.

I was pissed. I got ahold of one of my Palliative care nurses and the conversation came up. She was mad. I cut and pasted the emails to her and she just kept saying "That is not how we nurses act. You don't just brush off a patient. Even if some word choice they made offended you for some reason."
She called my Surgeons main nurse and told her that she was angry at the exchange and imagine how the patient feels. If it feels like someone has written you off, you lose a small amount of hope yourself. That nurse called me back and asked me how I was feeling, what I was thinking and told me she would look into the exchanges but also get my original nurse back involved in my care. (She had been off for medical issues, she was in a boot)
That nurse called me and apologized for not following up with me. Dayna (the mad nurse) had told her that it was healed, and we were done with wound care. She said she took her at her word and said she still should have just called me herself.

Now I have an appointment with my surgeon on Monday to follow up with him. They are concerned I am still in so much pain 5 weeks out. He will look at the wound himself to see if I am healed enough to start Chemo and see if he can come up with reasons for me still being in so much pain.
I had thought we couldn't do chemo until it was closed, but that could take months. The only goal is that the bottom layers of the wound are strong and healed. The top layers could take months to heal, and we can't wait that long.

It has just been an emotional week fighting for quality care which I shouldn't have to do. When anyone in your team feels like they are shoving you out the door you sit and think to yourself. "Well. Obviously, she has already written me off. So. Why should I fight?" It took several days, and several conversations with a handful of of people for me to get back to feeling okay again.

I'm angry at what life has dealt me. I'm emotional. My kids are falling apart. My husband puts on the brave face for everyone and outwardly only shows the positive "Kick its ass" vibes.
I want a fighting chance even if I know it would take a miracle at this point. I've gotten enough shit dealt to me at this point. Let me have the miracle.

I'm sorry I haven't been around to respond to this. A lot of others have and in some great ways.
I just want you to know I'm paying attention and that you're important to me (and you are to a lot of others here too).

I'm really frustrated for you, and angry at the problems you've had. And I want you to know that I think you deserve a miracle.

 

[hotwords229_A]

I appreciate the love. I know I have had my share of times of being a dick and have hurt people over the years, but I definitely appreciate the love.

I have always enjoyed our conversations also.

This has to be a typo.

I assume you meant to write, ‘I know I have shared dicks many times and have made them spurt over the years—‘

 

[LadyLascivious1]

So, the appointment went well today. My surgeon was in a good mood and super happy. He said that he was happy with how my wound is healing (it has closed more in the last week) That he now wants me to get in touch with the Oncologist to get the ball rolling for Chemo. I told him they told me he's booking out 2 months now. They said that if it takes that long to get in and see him, we'll have to find a different Oncologist.
So, at least I started off my week on a positive note. He told me that he expected me to have pain and reminded me that when we talked about the surgery, we discussed that this could take up to 6 months to heal. So, the nurses being worried, was not something he shared.
Oncology next. Well that and getting a port. But I'm going to schedule that after I see how long it'll take to get in to see the Oncologist.

I’m so glad you had some good things happen today! I got really angry reading some of your recent posts about the care you’ve received, but you get to be the angry one and we’re just here to help be supportive however works best for you

 

[Joxlrg]

Good to hear things are moving forward Sassy.. I give you an internet hug !!!